There's still a Chance!!

So when we go to Philadelphia there was a chance that we would be able to see one of the specialty doctors that research Lebers. Well I was getting kind of bummed because we were suppose to know the first of June if we got an appointment or not and I never heard. So this morning I e-mailed the gal over the Foundation for Retinal Research and asked her if she knew anything about doc appointments and she said the schedule hasn't came out yet but should next week!!! I was so excited to hear that. I know the doctors back there won't have any miracle cure, but I want to talk to someone that knows there stuff about Lebers and who can give me straight answers!! Dr. Stone is the master mind with Leber's and he studies at CHOP in Philadelphia. He will be at the conference which even if we don't have an exam with him it will be great to introduce ourselves to him and kind of get our foot in the door in case there is a cure for our gene type down the road. I am getting so excited to go. I can't wait to meet all these families around the world in our same position and see all the awesome kids with Leber's!! I will update the blog hopefully next week when I hear if we got an appointment. Until then if any one has any great suggestions on how to entertain an 18 month old on a 5 hour flight I would love to hear them!!